Within each category are a number of different boards which are the sub-categories. To hear from us, enter your email address below. And there are lots of discussions about coping with treatment side effects such as the chemotherapy monthly threads and this excellent thread called Top tips to help you get through chemotherapy. Far from it in fact. OK. Cancer Council NSW - Community.
Message Boards/Online Communities for Metastatic Breast Cancer Message Boards are always there 24/7.
Breast Cancer Now have lots of categories like “Going through treatment” and “Genes and breast cancer”. Find out about local hospices because they also have coffee mornings, support groups, drop-ins for breast cancer patients. Learn more.
Join our online network now.
chemo prep and planning part 6: Chemo day! She found support through our Someone Like Me service. The mixture of emotions experienced is as varied as there are people diagnosed.
A quick summary, Clinical trials: What every cancer patient needs to know, Let’s cut to the chase: surgery for breast cancer, Taking out those lymph nodes: auxiliary node dissection, Lumpectomy, mastectomy and breast reconstruction, Surgery prep and planning tick off checklist (printable), Chemo prep and planning Part 1: Hospital visit and low immunity, Chemo prep and planning part 2: your chemo bag, chemo prep and planning part 3: Visiting the dentist, chemo prep and planning part 4: getting organised at home, chemo prep and planning part 5: Toiletries and medications. PUBLISHED ON: 14 July 2014. Disclaimer: Please note that I am not a doctor, psychologist, surgeon, or other medical professional, I am just someone who has traveled the breast cancer road. Helping you through breast cancer treatment. Don’t be put off by the word ‘hospice’. Why should you join the online network? … Some advice if you plan on visiting some of these online forums or support groups: 1. But you are not alone. When Chloë was diagnosed with breast cancer earlier this year, the first thing she did was fly back to the UK for treatment.
2. 4. After breast cancer surgery, Dawn lost confidence in how she looked. It is more helpful if you know the topic you are looking for discussions about so you can search for that topic. Breast Cancer. The mixture of emotions experienced is as varied as there are people diagnosed. It puts you in touch with other women going through breast cancer treatment providing a lovely space for everyone to message their worries, concerns and generally supporting each other. Joining criteria is that you are under 45 and live in the UK. Are you a cancer patient? And finally I must also mention an amazing App called Booby Trapp which enables you to connect with other young breast cancer patients in your area or around the world. This website uses cookies.
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The online network includes people at different stages of their breast cancer journey, people living with metastatic breast cancer, partners, family and friends. Take a look at their websites to see if they have a centre near you.
A place to go with queries, questions, concerns and where you can get advice, encouragement and support. For example there’s a thread where people share about the difficult decisions they’ve taken about surgery; what did and did not work for them and what they wished they knew before their own began. If you’re affected by breast cancer and our Forum seems like a place where you might get inspiration hope and support I look forward to welcoming you there. Here are a few: 1. Macmillan can help you find a support group near you. 1. Some women diagnosed with breast cancer retreat into themselves and can’t bear the idea of reading about other women’s cancer journeys, let alone talking to anyone else who has breast cancer. non-CSN members) and the content can be found via internet search engines.
ALWAYS talk to your medical team about concerns and questions relating to your cancer treatment plan. 5. Share your stories or find answers to your questions on how to deal with diagnosis, treatment, advanced stages of cancer. 2. There are a number of Maggies Centres around the UK which provide support and advice for all types of cancer. You can filter member profiles by diagnosis, age and location to connect with other women like you. The App also has features to help with keeping appointments, recording side effects etc, and a helpful glossary of breast cancer terminology. This isn’t organised quite as well as the Breast Cancer Now forum and it is more difficult to browse around. There are plenty of these.
And then within each sub-category are ‘threads’ which are the conversations. We are a 501(c)(3) nonprofit organization offering a complete resource for breast cancer, including up-to-date information on the latest treatments, screening tests, stages and breast cancer types, as well as support through our active online community. It is still going strong.
You’ll need to register and sign in to take part in chats and friendships. Don’t compare your diagnosis with anyone else’s diagnosis because we are all different. These are absolutely great for getting advice from others in your position, and getting support from a community of other ladies who know exactly what your are going through. There are forums, support groups and chat groups where anyone with any type of breast cancer diagnosis is welcome. So when faced with anger or moaning or grumbling (online or in person) if you are feeling strong enough then perhaps consider giving love and support. Don’t be put off by this; it is just to protect everyone’s privacy and ensure that all members are genuine breast cancer patients. Research actually shows that taking part in support groups, where you both give and receive help, is an effective way to reduce the stress and anxiety that can come with a breast cancer diagnosis.
The Breast Cancer Forum of VoCP offers an online community for cancer patients to interact with each other and learn about the top Breast Cancer drugs, supportive therapies, and side effects. Our Forum offers a safe space where you can talk online to other people going through breast cancer. First posts from new users are read before they are published. If you or a loved one has been diagnosed with breast cancer, this is the community to discuss your experience, find support, and meet others going through... 443 Members. An example is their Younger Women Together group. 1. Everyone reacts differently to their diagnosis and treatment.
In the Useful Links/Resources section there is a list of regional help centres and charities for breast cancer patients. For some women, the first thing they want to do with their diagnosis is go out and find someone else in the same position and share share share. There are some for certain age groups, there are some for certain types of breast cancer, there are some for certain ethnic backgrounds, some for men, some for certain age groups and some where everyone is welcome. And it can leave you feeling alone and scared. 4. Simply the Breast (Gemma’s Support Group) – a lovely facebook group run by the wonderful Gemma, where anyone with, or affected by, breast can join in the chat. Ask your breast care nurse for recommendations. Ask your hospital if they have a support group service. 3. Luckily there is a category on “welcome and how to use the forum”. 5. They provide all sorts of up to date information about treatment, articles and blogs. It merely contains tips and advice based on my experience together with information which I have researched from some excellent websites and books. There are loads of us on Instagram – I am amazed by the number of wonderful, inspiring women who are going through breast cancer or have recently been through it, sharing their stories on Instagram. But people also share similarities and many find that talking with others in the same situation can lessen the sense of isolation that’s reported by so many. Childhood Cancers. 5. My local hospice is a god-send for breast cancer patients and they are all about helping people who are living with cancer. Despair can come across in many forms: sadness, anger, fear, complaints, tears.
Also our specialist information resources are instantly and freely available via our website. The best thing to do is make yourself a cuppa, get comfy and spend a few hours exploring the discussions going on. It is therefore perfectly normal for someone to express their despair on one of the forums or online chat rooms, or even at a support group. The aim of the group is to give all previvors/survivors and thrivers a place to meet friends/chat and share all things cancer related. It is fully moderated which means each post is read by our trained staff. You can check their site for one near you. There is also a regular breast cancer twitter chat which takes place every Tuesday evening #bccww.
It’s easy to post your own comments, using a screen name, and … home; Forums. The whirlwind of a breast cancer diagnosis can leave you breathless. The Forum is available 24 hours a day every day of the year. Safe and supportive: our online breast cancer discussion Forum. Having the support of others is an important part of breast cancer survivorship. True Cancer Bodies A place to chat and meet patients/survivors/thrivers of all cancers. There are some support groups which focus themselves on Instagram: London Breasties Part of the wider US based non profit Breasties, the London arm of this organisation is run by Lucy and Tamara. Breast Cancer Now is a company limited by guarantee registered in England (9347608) and a charity registered in England and Wales (1160558), Scotland (SC045584) and Isle of Man (1200).
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For lyndseyloo, Clarissa81 and thousands of others the Forum contains a wealth of experience and understanding. You could contact one of these organisations near you about how they can help you. 2. This is fantastic. Don’t compare your treatment regime with anyone else’s regime because these are tailored to our individual situations and our regimes will be different, even if it seems that we have the same diagnosis. They will have a Facebook page up and running soon. I cannot praise this network enough.